Menkes International Association
An international network of volunteers united by a single vision: create a future in which Menkes disease is nothing more than a memory.
Who we are
The Menkes International Association (MIA) and Menkes Europe were established in 2020 under Spanish Law 1/2002. We are an international network of volunteers who share their expertise to advance research and support families affected by Menkes disease.
MIA is certified by the official registry of Associations in Spain and operates within the European Union's data framework, ensuring full GDPR compliance.
Our director is Aurora Mateos, based in Málaga, Spain. The organisation relies on an international volunteer network rather than a traditional hierarchical staff structure — every role is filled by someone personally touched by Menkes disease.
Our Objectives
Creating the first international patient registry for clinical trials
Administering the Menkes network globally
Gathering comprehensive information on the disease worldwide
Fostering international cooperation and knowledge sharing
Supporting families impacted by Menkes disease
Certified by the Official Registry of Associations in Spain
Official certification document — Spanish Ministry of Interior