Menkes International Association
An international network of volunteers united by a single vision: create a future in which Menkes disease is nothing more than a memory.
Who we are
The Menkes International Association (MIA) and Menkes Europe were established in 2020 under Spanish Law 1/2002. We are an international network of volunteers who share their expertise to advance research and support families affected by Menkes disease.
MIA is certified by the official registry of Associations in Spain and operates within the European Union's data framework, ensuring full GDPR compliance.
Our director is Aurora Mateos, based in Málaga, Spain. The organisation relies on an international volunteer network rather than a traditional hierarchical staff structure — every role is filled by someone personally touched by Menkes disease.
Our Objectives
Creating the first international patient registry for clinical trials
Administering the Menkes network globally
Gathering comprehensive information on the disease worldwide
Fostering international cooperation and knowledge sharing
Supporting families impacted by Menkes disease
Our Structure
Menkes International is organised around the Executive Board, the Copper(less) Committee and its Core Team, the Legal Advisory Board, the Families Committee and our Advisors.
Certified by the Official Registry of Associations in Spain
Official certification document — Spanish Ministry of Interior
Explore more
Executive Board
The governing body (Patronato) of MIA
Copper(less) Committee
Patient advocacy group
CORE Team
The people behind MIA
Legal Advisory Board
Pro bono legal counsel
Families Committee
Support and information exchange for families
Advisors
High-level advisors across different fields
Basic Texts
Statutes and official documents