Videos
Family stories, educational resources and event recordings related to Menkes disease.
Marco, the only child in the world in pioneering therapy against Menkes syndrome
Marco is the first child in the world with an exceptional treatment for Menkes ultra-rare disease. A 20-month-old boy with a pioneering copper-based therapy.
YouTube
Introduction to Menkes (in Spanish)
An introduction to Menkes disease in Spanish — its genetic basis, symptoms and current treatment options.
YouTube
Menkes kinky hair syndrome
Educational video on Menkes kinky hair syndrome — clinical features, diagnosis and pathophysiology.
YouTube
The Menkes disease symptoms
A clinical overview of the symptoms of Menkes disease, produced for healthcare professionals and families.
Vimeo
Menkes Syndrome — The National Institute of Health
The NIH National Library of Medicine entry and educational material on Menkes syndrome.
NIH / NLM
Baker's Diagnosis of Menkes Disease
A family's account of receiving a Menkes disease diagnosis. Shared by The DeMeyers family.
The DeMeyers Family
Menkes Disease: Finding Help & Hope
Documentary video by The Menkes Foundation (USA) — families finding help and hope after a Menkes diagnosis.
The Menkes Foundation
Yusuf Hamied — MIA Godparent
Yusuf Hamied, philanthropist and CEO of CIPLA therapeutics, speaks as a Godparent of the Menkes International Association.
YouTube
Carlos Alvarez — MIA Godparent
Carlos Alvarez, acclaimed Spanish baritone, speaks as a Godparent of the Menkes International Association.
YouTube
More videos are available on the original MIA website and on our social media channels.