The Menkes Network
An international network of volunteers — families, doctors, researchers and organisations — united to fight Menkes disease across borders.
Our Network
Our platform relies upon an international network of volunteers who share their expertise to ensure the research moves forward and the information flows. The network also provides a support system to affected families.
The network is administered by the Menkes International Association (MIa), registered under Spanish Law 1/2002 in Málaga, Spain, and certified by the official registry of Associations in Spain.
Associated Institutions
Hospital Pediátrico Bambino Gesù
Rome, Italy
Texas A&M University
Texas, USA
Hospital Sant Joan de Déu
Barcelona, Spain
Kennedy Center
Copenhagen, Denmark
National Member Charities
- Menkes Spain — Fundación Amigos de Nono
- Menkes Argentina (AMA)
- Menkes Brazil
- Menkes Chile
- Menkes Colombia
- Menkes France — Nos Enfants Menkes
- Menkes Italy — Angeli per la vita
- Menkes Mexico
More national associations are joining the network. Contact us if you represent a national Menkes organisation not listed here.
Godparents
Yusuf Hamied
Philanthropist and CEO, CIPLA Therapeutics
Carlos Alvarez
Acclaimed Spanish baritone
Jean-François and Karin Pulvenis
International Lawyer; Former FAO Director and Diplomat
Rocío Calvo
Neuro-paediatrician
Sofía Valero
Psychotherapist
Natalia Jaraba
Expert On Public Health
Belén Martínez
Researcher
Beatrice Paola Festa
Postdoctoral Researcher, University Of Cambridge
Rafael Perez Castillo
PhD, Legal Adviser On Non-Profit Organizations
Join the Network
Are you a researcher, physician, or national charity working on Menkes disease?